On this page
1This disease
- cureMEC: The Myoepithelial Carcinoma Project
- The patient-driven research project for this disease. Research, biospecimens and support.
2Rare cancers
- Rare Cancer Research Foundation
- Funds rare cancer research and runs tissue donation programs. A named collaborator of cureMEC.
- NCI MyPART: Pediatric and Adult Rare Tumor Network
- A U.S. National Cancer Institute network that studies rare tumors and sees patients.
- National Organization for Rare Disorders (NORD)
- Information, patient assistance programs and advocacy for rare diseases in the United States.
- Genetic and Rare Diseases Information Center (GARD)
- A U.S. National Institutes of Health information service on rare diseases.
3Soft tissue
- Sarcoma Foundation of America
- Research funding and patient resources for sarcoma. Soft-tissue myoepithelial carcinoma is treated at sarcoma centers.
- Sarcoma UK
- Information, a support line and research funding for sarcoma in the United Kingdom.
4Salivary glands
- Salivary Gland Cancer UK
- A charity for people with salivary gland cancers, including the rarer types.
- Head and Neck Cancer Alliance
- Support, education and advocacy for head and neck cancers in the United States.
5General cancer support
- National Cancer Institute: contact and information service
- Cancer information specialists by phone, chat and email.
- CancerCare
- Free counseling, support groups and financial help from oncology social workers.
- Triage Cancer
- Help with insurance, employment and money after a cancer diagnosis.
- Macmillan Cancer Support
- Information, a support line and financial guidance in the United Kingdom.
6In a crisis
- 988 Suicide and Crisis Lifeline
- Call or text 988 in the United States, at any hour.
7About this list
Each address was checked on 2026-11-11 and answered. Being listed is not an endorsement, and none of these organizations has reviewed this page. Know one that belongs here? Send it.