On this page
1Who compiles it
Peter Saddington, a patient. He was diagnosed with myoepithelial carcinoma of the skin in September 20211. He is not a doctor or a scientist, and nothing here should be read as if he were.
His account of why he built the reference is the last section of the main page.
2What it is, and what it is not
It is a reference to the published research on one rare cancer. It reports what studies found and names each study, so that a reader can go to the source.
It is not medical advice. It does not recommend a treatment, a doctor or a hospital. Figures for groups of patients cannot say what will happen to one person. Decisions belong with you and your doctors.
3How it is made
- Open sources only. The records come from free public databases: PubMed, Europe PMC, OpenAlex, Semantic Scholar, ClinicalTrials.gov and the others named on each page. No paywalled article was accessed.
- Every figure has a source. Each factual sentence carries a numbered reference. The program that builds the pages stops if a sentence points to a source that is not in the catalog.
- Compiled with AI. One person could not read 10,435 records. AI models were used to gather and sort the records, to help write the pages, and to extract the case registry, the treatment table, the trial list and the pathology tables from abstracts. Pages built that way say so at the top.
- Checked against the sources. On 11 November 2026 a model checked 141 cited claims against their sources. Thirteen were wrong or not supported, and were corrected. The list is public.
- Translations. The Spanish, Chinese and Japanese pages were translated by a model and checked by translating them back into English. No clinician who speaks the language has reviewed them, and each page says so.
The method in full, with its limits, is in Method and limits on the main page.
4Who has reviewed it
No clinician has reviewed this site. When one does, their name and the date will be given here and on the pages they read.
If you treat or study this disease and would read part of it, please write. An hour on the sections about diagnosis, genetics, outcomes and treatment would help most.
5Independence
This is a personal project. It carries no advertising, has no sponsor and sells nothing. No link on it earns a commission.
The organizations, hospitals, trials and researchers named here are listed because they appear in the public record. Being listed is not an endorsement, and none of them has reviewed or paid for anything on the site.
The pages are hosted on staas.fund, the compiler's own website, which is otherwise about his work.
6Corrections
If something here is wrong, out of date or missing, write. A paper, a trial, a registry, a research group or a mistake in a number are all welcome, from patients and families as much as from clinicians.
A reported error is checked against the source. If it is an error, it is corrected, and the correction is recorded with its date in Corrections and changes. Corrections are not made silently.
7How it is kept current
Each page shows the date it was last updated. The records were last downloaded from the public databases on 11 November 2026. Papers added by a later download are listed on What is new and in the feed.
8Privacy
The site has no accounts, no forms and no advertising, and it sets no cookies of its own.
It is served through Cloudflare, the network that staas.fund uses. Like any web host, Cloudflare sees each request, including the address of the computer it came from. It adds two things to every page: a script that checks whether a visitor is automated traffic, which sets one cookie named cf_clearance, and Cloudflare Web Analytics, which counts page views without cookies.
Search runs in your browser, against a file the site downloads. The words you search for appear in the page address, so they reach the server like any other address you visit.
If you write, your message and your email address go to Peter Saddington. They are used to answer you and to correct the site, and for nothing else.
9Reuse and citation
The catalog, the case registry and the other data files may be reused under the Creative Commons Attribution 4.0 license. The scripts that gather the records and build the pages are public at github.com/agilepeter/myoepithelial-carcinoma.
To cite: Saddington P. Myoepithelial carcinoma: a reference to the published research. https://staas.fund/myoepithelial-carcinoma/ Updated 12 November 2026.
The text of the pages may be quoted with a link. Please ask before republishing it.
10Contact
Write to [email protected].
Cloudflare hides the address from programs that collect email addresses, so it shows only where scripts are allowed. Written out, it is peters at staas dot fund.
It helps to say which page you mean and, for a correction, where the right figure can be read. Mail about this reference is read by Peter Saddington. He cannot give medical advice or comment on anyone's care.